Thanks to vital donor support, researchers can explore uncharted paths and treatment options for children like Ellie, and while rapid advances through clinical research and trials are giving new hope to kids, we’re not done yet. Last year, more than 99,000 patients visited the hospital, including both its acute care centre and research institute, mental health facility and rehabilitation centre.īC Children’s also cares for every child diagnosed with cancer. She also was also enrolled in a research initiative which uses genome sequencing on individual tumours to find the best treatment options for that child’s hard-to-treat cancer.īC Children’s Hospital is BC’s only hospital devoted exclusively to the care of children – specialized care they often can’t receive anywhere else. Rebecca Deyell, Ellie’s Oncologist.įollowing a tracheostomy to open up Ellie’s windpipe, intensive treatment included chemotherapy, surgery and radiation.
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“This made it essential that we call together a big team from all different specialties to safely manage her care while making sure that we maintained her airway,” says Dr. Because of its location and rarity, doctors didn’t have a standard approach to care.Īs the tumour pushed on Ellie’s trachea to the point it was difficult to breathe, her health quickly worsened.
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Usually found in the kidney or brain, Ellie’s tumour was in a saliva gland below her lower jaw. Tests revealed a rare, fast-growing form of childhood cancer: malignant rhabdoid sarcoma. Osoyoos parents Racyne and Craig were preparing to greet the New Year in 2017 when they discovered a lump on 2-year-old Ellie’s jaw.Ī month later, after treatment for a suspected infection, multiple appointments and no improvement, the family was headed by ambulance to BC Children’s Hospital where their lives forever changed.
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“You would think hearing, ‘Your child has cancer,” is the worst thing you’ll ever hear in your life, but hearing that there’s no known treatment to fix her is a nightmare.”